Many of the most at-risk infants and children in London may face the prospect of being discharged from hospitals without the crucial expert care they require, as a financial crisis endangers the city’s first and most established children’s hospice.

For a quarter of a century, Richard House, located in Newham in east London, has been delivering specialized care to children with complex, life-limiting illnesses, many of whom may have only days to live.

These children predominantly come from some of the least affluent neighborhoods in London, including Newham, Hackney, Tower Hamlets, and certain areas of Barking and Dagenham.

The hospice reports that the combined effects of the cost-of-living crisis, the impact of the pandemic, and escalating inflation have had a catastrophic impact on their fundraising efforts.

Jayden, nearing 15 years old, has a rare and life-threatening condition known as Lowe syndrome, which affects only a small number of individuals in the UK.

His mother, Kareema Motala from Tower Hamlets, emphasizes the essential nature of the service.

“Unless you have a child with severe disabilities or have witnessed it firsthand, you cannot fully grasp the immense need for care involved,” she stated.

“For me, it’s round-the-clock care. Everything that needs to be done must be managed by one or two carers at all times.”

More than 300 families throughout London benefit from Richard House, including its gardens and recreational facilities.

Less than a third of its financial support is sourced from the NHS, while the remainder is reliant on donations.

The current cost of living crisis has led to a decline in those donations, and Richard House warns that it might soon have to decline assistance to some families.

Paul Richards, the CEO of Richard House, highlighted the urgency, stating: “The statistics are alarming. We need to secure £1.2 million before the year concludes.

“We have successfully raised a portion of these funds through our initiatives, but there still remains £338,000 to be found by December.

“We are at a critical juncture where we may have to turn away individuals.”

Anne Biggs, the director of care and family services at Richard House, remarked: “We have been a source of support for parents facing the unimaginable challenges.

“I have seen bravery that truly takes your breath away—not only from our children but also from their siblings, parents, and our dedicated staff.

“Failing to provide care for these children would be devastating. The service we offer is exceptional—and irreplaceable.”